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Abstract
Introduction: It has been documented that implementing leisure activity programs during dialysis sessions is a good alternative to improve not only the perception towards treatment, but also other alterations present in people with chronic kidney disease on haemodialysis. Objectives: To analyse patient satisfaction with the Lack of Leisure Activities Project, as well as quantify its economic cost. Material and Method. Descriptive cross-sectional study conducted in 2019. Clinical data were collected. Satisfaction with the proposed activity project was assessed. Self-perception data on health status and treatment were collected. The economic cost of the project was quantified. Results: 37 patients were evaluated. The median satisfaction score for the activities was: “Pallapupas” Program 8/10 [P256; P7510], Monthly celebrations 10/10 [P258; P7510], 7/10 intradialytic exercise [P255; P7510], live concerts 7/10 [P255.5; P759.5]. Regarding to self-perception, 37.84% (n=14) perceived the treatment negatively and 29.73% (n=11) were not satisfied with the time invested. 91.89% (n=34) wish to continue participating in organized activities. The total theoretical cost of the 4 activities evaluated is 33,715.22 euros per year. Conclusions: A high satisfaction of the patients with the Lack of Leisure Activities in haemodialysis Project was found, being the annual cost of the project acceptable.
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References
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- Staricoff R, Clift S. Arts and music in healthcare: an overview of the medical literature: 2004-2011. Chelsea and Westmister Health Charity; London; 2011.
- Bungay H, Munn-Giddigs C, Wilson C. The value of the arts in therapeutic and clinical interventions: a critical review of the literature. Arts & Humanities Research Council: Cambridge; 2014.
- Sonke J, Pesata V, Arce L, Carytsas FP, Zemina K, Jokisch C. The effects of arts-in-medicine programming on the medical-surgical work environment. Arts Heal. 2015;7:27-41. DOI: https://doi.org/10.1080/17533015.2014.966313
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- Florido Alba F, García-Agua Soler N, Martín Reyes A, García Ruiz AJ. Crisis, gasto público sanitario y política. Rev Esp Salud Pública. 2019;93:e1-e13.
References
Kidney Disease: Improving Global Outcomes (KDIGO) CKD Work Group. KDIGO 2012 clinical practice guideline for the evaluation and management of chronic kidney disease. Kidney Int Suppl. 2013;3:1-150.
Gorostidia M, Sánchez-Martíneza M, Ruilopea LM, Graciania A, de la Cruza JJ, Santamaría R. Prevalencia de enfermedad renal crónica en España: impacto de la acumulación de factores de riesgo cardiovascular. Nefrología. 2018;38(6):573-680. DOI: https://doi.org/10.1016/j.nefro.2018.04.004
Sánchez-Martín CI. Cronicidad y complejidad: nuevos roles en Enfermería. Enfermeras de Práctica Avanzada y paciente crónico. Enfermería Clínica. 2014;24(1):79-89. DOI: https://doi.org/10.1016/j.enfcli.2013.12.007
Vargas-Marcos F, coordinador. Documento Marco sobre Enfermedad Renal Crónica (ERC) dentro de la Estrategia de Abordaje a la Cronicidad en el SNS [Internet]. Madrid: Ministerio de Sanidad, Servicios Sociales e Igualdad; 2015. [Consultado 6 jun 2019]. Disponible en : http://www.mscbs.gob.es/organizacion/sns/planCalidadSNS/pdf/Enfermedad_Renal_Cronica_2015.pdf.
Lorenzo V, Perestelo I, Barroso M, Torres A, Nazco J. Economic evaluation of haemodialysis. Analysis ofcost components based on patient-specific data. Nefrología. 2010;30(4):403-12.
Ministerio de Sanidad, Servicios Sociales e Igualdad. Estrategia para el abordaje de la cronicidad en el Sistema Nacional de Salud (SNS). [Internet]. Madrid: Ministerio de Sanidad, Servicios Sociales e Igualdad; 2012. [Consultado 6 jun 2019]. Disponible en: http://www.msssi.gob.es/organizacion/sns/planCalidadSNS/pdf/ESTRATEGIA_ ABORDAJE_CRONICIDAD.pdf.
World Health Organization. Preventing chronic diseases a vital investment. [Internet]. Ginebra: World Health Organization; 2005. [Consultado 6 jun 2019]. Disponible en:https://apps.who.int/iris/bitstream/handle/10665/43314/9241563001_eng.pdf?sequence=1.
Pedreira-Robles G, Martínez-Delgado Y, Vasco-Gómez A, Herrera-Morales C, Junyent-Iglesias E, Pascual-Santos J, et al. Assessment to establish the need for psychological counselling in chronic kidney disease patients on haemodialysis. J Nephrol Kidney Dis. 2018;2(1):117.
Wang WL, Liang S, Zhu FL, Liu JQ, Wang SY, Chen XM, et al. The prevalence of depression and the association between depression and kidney function and health-related quality of life in elderly patients with chronic kidney disease: a multicenter cross-sectional study. Clin Interv Aging. 2019;14:905-13. DOI: https://doi.org/10.2147/CIA.S203186
Taylor DM, Fraser SD, Bradley JA, Bradley C, Draper H, Metcalfe W, et al. A Systematic Review of the Prevalence and Associations of Limited Health Literacy in CKD. Clin J Am Soc Nephrol. 2017;12(7):1070-84. DOI: https://doi.org/10.2215/CJN.12921216
Junqué-Jiménez A, Esteve-Simó V, Tomás-Bernaveu E, Paz-López Ó, Iza-Pinedo G, Luceño-Solé I, et al. Resultado de un programa adaptado de ejercicio físico en pacientes ancianos en hemodiálisis. Enferm Nefrol. 2015;18(1):11-8. DOI: https://doi.org/10.4321/S2254-28842015000100002
Vasco-Gómez A, Herrera-Morales C, Martínez-Delgado Y, Junyent-Iglesias E, Pedreira-Robles G. Relación entre calidad del sueño, ansiedad y depresión en pacientes con enfermedad renal crónica en hemodiálisis. Enferm Nefrol. 2018;21(4):369-76. DOI: https://doi.org/10.4321/S2254-28842018000400006
Pedreira-Robles G, Vasco-Gómez A, Herrera-Morales C, Martínez-Delgado Y, Junyent-Iglesias E. Análisis del estado psicofísico de los pacientes en hemodiálisis. Enferm Nefrol. 2018;21(1):44-51. DOI: https://doi.org/10.4321/S2254-28842018000100006
Pedreira-Robles G, Vasco-Gómez A, Martínez-Delgado Y, Herrera-Morales C, Junyent-Iglesias E, Ho-Wong TM. Using Creative Activities to Improve Treatment Perceptions of Patients on Hemodialysis. Nephrol Nurs J.2018;45(5):463-68.
All-Party Parliamentary Group on Arts, Health and Wellbeing. Creative Health: The Arts for Health and Wellbeing [Internet]. Londres: 2017. [Consultado jun 2019]. Disponible en:https://www.culturehealthandwellbeing.org.uk/appg-inquiry/Publications/Creative_Health_Inquiry_Report_2017_-_Second_Edition.pdf.
Carswell C, Reid J, Walsh I, McAneney H, Noble H. Implementing an arts-based intervention for patients with end-stage kidney disease whilst receiving haemodialysis: a feasibility study protocol. Pilot and Feasibility Studies. 2019;5:1. DOI: https://doi.org/10.1186/s40814-018-0389-y
Staricoff R, Clift S. Arts and music in healthcare: an overview of the medical literature: 2004-2011. Chelsea and Westmister Health Charity; London; 2011.
Bungay H, Munn-Giddigs C, Wilson C. The value of the arts in therapeutic and clinical interventions: a critical review of the literature. Arts & Humanities Research Council: Cambridge; 2014.
Sonke J, Pesata V, Arce L, Carytsas FP, Zemina K, Jokisch C. The effects of arts-in-medicine programming on the medical-surgical work environment. Arts Heal. 2015;7:27-41. DOI: https://doi.org/10.1080/17533015.2014.966313
Guenoun Sanz M, BauçaCapellà MA. ¿Cómo influye en los pacientes crónicos de hemodiálisis la organización de actividades de ocio durante sus sesiones? Enferm Nefrol. 2012;15(1):57-62. DOI: https://doi.org/10.4321/S2254-28842012000100008
Moore G, Audrey S, Barker M, Bond L, Bonell C, Hardeman W, et al. Process evaluation of complex interventions. UK Medical Research Council (MRC) guidance. BMJ. 2015;350:h1258. DOI: https://doi.org/10.1136/bmj.h1258
Salahaldin L, Angerer M, Kraus S, Trabelsi D. A duration-based model of crowdfunding project choice. Finance Research Letters. 2018;29:404-10. DOI: https://doi.org/10.1016/j.frl.2018.11.005
Haefner C, Gutiérrez M. Evaluación de políticas públicas y efectividad de la inversión social. Estudio meta-evaluativo sobre desempeño de programas sociales. Rev Tzhoecoen. 2019;11(2):10-22.
Eiroa Orosa FJ. ¿Es posible la investigación desde el activismo en salud mental? E-Átopos. 2019;5:64-84.
Florido Alba F, García-Agua Soler N, Martín Reyes A, García Ruiz AJ. Crisis, gasto público sanitario y política. Rev Esp Salud Pública. 2019;93:e1-e13.