Main Article Content

Abstract

Introduction: A significant number of patients starting on peritoneal dialysis are simultaneously told that they have end-stage chronic kidney disease and require peritoneal dialysis. For many patients the news is unexpected and heartbreaking, as they have to access dialysis in order to stay alive.


Methods: Qualitative, descriptive study with a pheno-menological approach. Of the 106 patients who were admitted to the outpatient peritoneal dialysis program, and who were asked for informed consent to answer the (Coping Inventory Strategies) instrument, 14 patients were selected who expressed their experiences regarding the diagnosis of chronic kidney disease and the urgent need for peritoneal dialysis. They
were asked to write in one page how they coped with the news of chronic renal failure and the need for peritoneal dialysis.


Results: The mean age was 58.3 years, 66% female and 34% male. Three categories and seven subcategories were identified: socio-occupational (social stigma and uncertainty about the work situation); attitude to death (resignatio and guilt) and family support (decision-making, motivati and support). The highest number of patients fell into the category of attitude to death and the subcategory of resignation as a coping strategy.


Conclusions: Patients described the phase when they learned of their diagnosis and admission to peritoneal
dialysis as the most difficult and traumatic time, expressed feelings of distress, personal or social limitations and confessed dependence on family support.

Keywords

patient´ s experiences self-care peritoneal dialysis phenomenology

Article Details

How to Cite
1.
Rodríguez-Zamora MC, Moreno-Serrano AP, Cabrera-Delgado AM, Regalado-Ruiz LA, Amato-Martínez JD. Patient’s experiences of being diagnosed with chronic kidney disease and being admitted to peritoneal dialysis. Enferm Nefrol [Internet]. 2022 [cited 2025 Apr 30];25(1):[about 7 p.]. Available from: https://www.enfermerianefrologica.com/revista/article/view/4431

References

  1. Webster AC, Nagler EV, Morton RL, Masson P. Chronic Kidney Disease. Lancet. 2017;389(10075):1238-52. DOI: https://doi.org/10.1016/S0140-6736(16)32064-5
  2. Méndez-Durán A, Pérez-Aguilar G, Ayala-Ayala F, Ruiz-Rosas RA, González-Izquierdo JdJ, Dávila-Torres J. Panorama epidemiológico de la insuficiencia renal crónica en el Segundo nivel de atención del Instituto Mexicano del Seguro Social. Dial Traspl. 2014;35(4):148-56. DOI: https://doi.org/10.1016/j.dialis.2014.08.001
  3. Torres-Toledano M, Granados-García V, López-Ocaña LR. Global burden of disease of chronic kidney disease in Mexico. Rev Med Inst Mex Seguro Soc. 2017;55(Supl 2):S118-23.
  4. Sadala ML, Bruzos GA, Pereira ER, Bucuvic EM. Patients’ experiences of peritoneal dialysis at home: a phenomenological approach. Rev Lat Am Enfermagem. 2012;20(1):68-75. DOI: https://doi.org/10.1590/S0104-11692012000100010
  5. Vázquez-Mata María Isabel R-EL. El especialista en medicina conductual y la atención al enfermo renal. En Reynoso Erazo L, Becerra Gálvez AL. Medicina Conductual: Teoría y Práctica. México: Qartuppi, UNAM; 2014. p.194-212.
  6. Wang XH, Pang JH, Lin L, Xu Y, Jiang Q, Wang Q, et al. Development and testing of Self-Management scale for DP patients. Perit Dial Int. 2015;35(3):342-50. DOI: htpps//:doi.org/:10.3747/pdi.2013.00190. DOI: https://doi.org/10.3747/pdi.2013.00190
  7. Prieto MA, Escudero MJ, Suess A, March JC, Ruiz A, Danet A. An Sist Sanit Navar. 2011;34(1):21-31. DOI: https://doi.org/10.4321/S1137-66272011000100003
  8. Brown JS, Elliott RW. Social Determinants of Health: Understanding the Basics and Their Impact on Chronic Kidney Disease. Nephrol Nurs J. 2021;48(2):131-45. DOI: https://doi.org/10.37526/1526-744X.2021.48.2.131
  9. Bravo-González MC. Generalidades psicológicas de los padecimientos crónico-degenerativos. En: Reynoso Erazo L, Becerra Gálvez AL. Medicina Conductual: Teoría y Práctica. México: Qartuppi, UNAM; 2014.43-64.
  10. Reynoso-Eraso L, Avila-Costa MR. Estrés y enfermedad crónica. En: Reynoso-Eraso L, Becerra-Gálvez AL: Qartuppi, UNAM; 2014.
  11. Tong A, Lesmana B, Johnson DW, Wong G, Campbell D, Craig JC. The perspectives of adults living with peritoneal dialysis: thematic synthesis of qualitative studies. Am J Kidney Dis. 2013;61(6):873-88. DOI: https://doi.org/10.1053/j.ajkd.2012.08.045
  12. Curtin RB, Johnson HK, Schatell D. The peritoneal dialysis experience: insights from long-term patients. Nephrol Nurs J. 2004;31(6):615-24.
  13. Bergjan M, Schaepe C. Educational strategies and challenges in peritoneal dialysis: a qualitative study of renal nurses’ experiences. J Clin Nurs. 2016;25(11-12):1729-39. DOI: https://doi.org/10.1111/jocn.13191
  14. Fernández Díaz R, Nuñez Moral M, Peláez Requejo B, Fernández Pérez M, Rábano Colino M. Vivencias del paciente renal en la transición de diálisis peritoneal a hemodiálisis: estudio fenomenológico. Enferm Nefrol. 2019;22(1):68-79. DOI: https://doi.org/10.4321/S2254-28842019000100010
  15. Figueiredo AE, Bernardini J, Bowes E, Hiramatsu M, Price V, Su C, et al. A Syllabus for Teaching Peritoneal Dialysis to Patients and Caregivers. Perit Dial Int. 2016;36(6):592-605. DOI: https://doi.org/10.3747/pdi.2015.00277
  16. Husserl E. La filosofía como ciencia estricta: Terramar Ediciones, Argentina; 2007.
  17. Cabrera-Delgado A, Rodríguez-Zamora M, Ventura-García M, Santillán-Torres C, Amato D. Asociación de estrategias de afrontamiento y calidad de vida relacionada con la salud en pacientes de diálisis peritoneal. Enferm Nefrol. 2019;22(4):398-404. DOI: https://doi.org/10.4321/S2254-28842019000400006
  18. Cano García FJ, Rodríguez Franco L, García Martínez J. Spanish version of the Coping Strategies Inventory. Actas Esp Psiquiatr. 2007;35(1):29-39.
  19. Fernández Nuñez L. ¿Cómo analizar datos cualitativos? Butlletí LaRecerca. 2006:1-13.
  20. Rodríguez Marin J, Angeles PM, Sofía. LR. Afrontamiento, apoyo social, calidad de vida y enfermedad. Psicothema, Universidad de Oviedo. 1993;5:349-72.
  21. Burlingame GM, Krogel JA Relative Efficacy of Individual versus Group Psychotherapy. International Journal of Group Psychotherapy. 2015;55(4):607-11. DOI: https://doi.org/10.1521/ijgp.2005.55.4.607
  22. Miaja Ávila M, Moral de la Rubia J. El significado psicológico de las cinco fases del duelo propuestas por Kubler-Ross mediante las redes semánticas naturales. Psicooncología. 2013;10(1):109-30. DOI: https://doi.org/10.5209/rev_PSIC.2013.v10.41951
  23. García-Haro J. Tres concepciones de la culpa: Historia y psicoterapia. Re Clínica e Investigación Relacional. 2015;9(1):187-205.
  24. Ramirez-Perdomo C, Solano-Ruiz MC. La construcción social de la experiencia de vivir con una enfermedad crónica. RevLatino-Am Emfermagem. 2018;26: e3028.
  25. Arias-Rojas M, Carreño-Moreno S, Chaparro-Díaz L. Incertidumbre ante la enfermedad crónica. Revisión integrativa. Revista Latinoamericana de Bioética. 2019;36(1):93-106. DOI: https://doi.org/10.18359/rlbi.3575
  26. Clavero FH, Ramírez Salguero MI, Herrera Ramírez I. Tratamiento de las creencias motivacionales en contextos educativos pluriculturales. Revista Iberoamericana de Educación. 2004;34(1):1-15. DOI: https://doi.org/10.35362/rie3412885
  27. Candelaria-Brito JC, Gutiérrez-Gutiérrez C, Bayarre-Vea HD, Acosta-Cruz C, Montes de Oca DM, Labrador-Mazón O. Caracterización de la enfermedad renal crónica en adultos mayores. Rev. Colomb. Nefrol. 2018;5(2):166-78. DOI: https://doi.org/10.22265/acnef.0.0.308
  28. Castillo Espitia E. La fenomenología interpretativa como alternativa apropiada para estudiar los fenómenos humanos. Revista Investigación y Educación en Enfermería. 2000;XVIII(1):27-35.

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