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Abstract
Introduction: The change of dialytic modality is an event of high stress and uncertainty when it is not desired, and which is described as a transition process, where the person moves from one state of life to another, involving the domain of new roles, knowledge and skills to return to the state of equilibrium prior to change. Objectives: To describe the experience of patients who change from peritoneal dialysis to hemodialysis. Material and Methods: Qualitative, descriptive study, based on the phenomenology. Nine informants selected by convenience sampling were subjected to semi-structured interview at home. The analytical development resulted from a deductive and inductive process from which emerged the thematic axes in which the experience of the participants was articulated. The authorization of the Ethics Committee was obtained and the findings were confirmed by the informants. Results: Three main themes emerged: the meaning of the transition experience, the phases of the transition process, and the changes of the being human in transition in terms of how were the psychic, physical, social and family modifications. Conclusions: The transition from peritoneal dialysis to hemodialysis is revealed as an experience of great vulnerability, which denotes changes in the health status, and in the relation between roles and skills, and it also requires changes in the behavior patterns of the participants and, therefore, results in the need to redefine a sense of themselves.
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References
- Mesa-Melgarejo L, Carrillo-Algarra AJ, Castiblanco RA, Reina LM, Ávila TM. Terapias de sustitución de la función renal: Metaestudio y síntesis de evidencias cualitativas. Aquichan. 2017;17(3):328-52.
- Clarkson KA, Robinson K. Life on dialysis: A lived experience. Nephrol Nurs J. 2010; 37(1):29-35.
- Tong A, Lesmana B, Johnson DW, Wong G, Campbell D, Craig JC. The perspectives of adults living with peritoneal dialysis: Thematic synthesis of qualitative studies. Am J Kidney Dis. 2013;61(6):873-88.
- Bayhakki, Hatthakit U. Lived experiences of patients on hemodialysis: A meta-synthesis. Nephrol Nurs J. 2012; 39(4):295-304.
- Jonasson K, Gustafsson L-k. You live as much as you have time to: The experience of patients living with Hemodialysis. Nephrol Nurs J. 2017;44 (1):35-41.
- Ley básica reguladora de la autonomía del paciente y de derechos y obligaciones en materia de información y documentación clínica. Ley 41/2002, de 14 de noviembre. Boletín Oficial del Estado, nº 274, (15/11/2002). [Consultado 5 Dic 2018]. Disponible en: https://www.boe.es/buscar/doc.php?id=BOE-A-2002-22188
- Botella J. Aspectos éticos, sociales y económicos del tratamiento de la insuficiencia renal. Nefrología. 1993;13(Supl 5):S38-40.
- Arrieta J, Rodríguez-Carmona A, Remón C, Pérez-Fontán M, Ortega F, Sánchez-Tornero JA et al. La diálisis peritoneal es la mejor alternativa coste-efectiva para la sostenibilidad del tratamiento con diálisis. Nefrología. 2011;31(5):505-13.
- Liberek T, Renke M, Skonieczny B, Kotewick k, Kowalewska J, Chmielewski M et al. Therapy outcome in peritoneal dialysis patients transferred from haemodialysis. Nephrol Dial Transplant. 2009;24 (9):2889-94.
- Covic A, Bammens B, Lobbedez T, Segall L, Heimbürger O, Van Biesen W et al. Educating end-stage renal disease patients on dialysis modality selection: A clinical advice from the European Renal Best Practice (ERBP) Advisory Board. Nephrol Dial Transplant Plus. 2010;3(3):225-33.
- Sauvé C, Vandyk AD, Bourbonnais FF. Exploring the facilitators and barriers to home dialysis: A scoping review. Nephrol Nurs J. 2016;43(4):295-308.
- Sadala MLA, Bruzos GAS, Pereira ER, Bucuvic EM. Patients´ experiences of peritoneal dialysis at home: A phenomenological approach. Rev Lat Am Enfermagem. 2012;20(1):68-75
- Meleis A. Transitions theory. In: Smith M, Parker M, editors. Nursing theories and nursing practice. 4ª ed. Philadelphia: F. A. Davis Company; 2015. p. 361-80.
- Meleis A, Trangenstein P. Facilitating Transitions: Redefinition of the nursing mission. Nurs Outlook.1994;42:255-9.
- Fex A, Flensner G, Ek AC, Söderhamn O. Health-illness transition among persons using advanced medical technology at home. J Caring Sci. 2011;25 (2):253-61.
- Boissinot L, Landru I, Cardineau E, Zagdoun E, Ryckelycnk JP, Lobbedez T. Is transition between peritoneal dialysis and hemodialysis really a gradual process? Perit Dial Int. 2013;33(4):391-7.
- Szeto CC, Kwan BC, Chow KM, Pang WF, Kwong VW, Leung CB, et al. Outcome of hemodialysis patients who had failed peritoneal dialysis. Nephron Clin Pract. 2010; 116(4):c300-6.
- Covic A, Bammens B, Lobbedez T, Segall L, Heimbürger O, Van Biesen W et al. Educating end-stage renal disease patients on dialysis modality selection: A clinical advice from the European Renal Best Practice (ERBP) Advisory Board. Nephrol Dial Transplant Plus. 2010; 3(3):225-33.
- Mendes A, Bastos F, Paiva A. A pessoa com Insuficiência Cardíaca. Factores que facilitam/dificultam a transição saúde/doença. Rev Enf Ref. 2010;3(2): 7-16.
- Martin-McDonald K, Biernoff D. Initiation into a dialysis-dependent life: an examination of rites of passage. Nephrol Nurs J. 2002;29(4):347-52.
- Lundmark M, Erlandsson LK, Lennerling A, Almgren M, Forsberg A. Health Transition after lung transplantation - a grounded theory study. J Clin Nurs. 2016; 25(15-16):2285-94.
- Contreras de la Fuente HS, Castillo-Arcos LC. Fenomenología: una visión investigativa para enfermería. Cult Cuid. 2016;44:15-24.
- Hutchinson TA. Transitions in the lives of patients with end stage renal disease: a cause of suffering and an opportunity for healing. Palliat Med. 2005; 19:590-4.
- Kaezer F, Valente G. Vivendo entre o pesadelo e o despertar: o primeiro momento no enfrentamento da diálise peritoneal. Esc Anna Nery. 2011; 15(1):39-46.
- Schumacher K, Meleis A. Transitions: A central concept in nursing. J Nurs Sch. 1994;26(2):119-27.
- Lindsay H, MacGregor C, Fry M. The experience of living with chronic illness for the haemodialysis patient: An interpretative phenomenological analysis. Health Soc Rev. 2014; 23(3):232-41.
- Moran A, Scott A, Darbyshire P. Waiting for a kidney transplant: patients´experiences of haemodialysis therapy. J Adv Nurs. 2010;67(3):501-9.
- Arman M, Rehnsfeldt A. The hidden suffering among breast cancer patients: A qualitative metasynthesis. Qual Health Res. 2003; 13 (4):510–27.
- Hurst H, Summers A, Beaver K, Caress AL. Living with encapsulating peritoneal sclerosis (EPS): The patient´s perspective. Perit Dial Int. 2014;34 (7):758-65.
- Kralik D, Visentin K, Van Loon A. Transition: A literature review. J Adv Nurs. 2006;55(3):320-9.
- Meleis AI. Transitions theory: Middle range and situation specific theories in nursing Research and practice. New York: Springer Publishing Company; 2010.
- Meleis AI, Sawyer LM, Im EO, Hilfinger Messias DK, Schumacher K. Experiencing transitions: An emerging middle-range theory. ANS Adv Nurs Sci. 2000;23(1):12-28.
- Calvey D, Mee L. The Lived experience of the person dependent on haemodialysis. J Ren Care. 2011; 37(4):201-7.
- Guerra-Guerrero V, Plazas MP, Camargo BL, Salas AV, González CG. Understanding the life experience of people in haemodialysis: Adherence to treatment and quality of life. Nephrol Nurs J. 2014;41 (3):289-97.
- Bayhakki, Hatthakit U. Lived experiences of patients on hemodialysis: A meta-synthesis. Nephrol Nurs J. 2012;39(4):295-304.
References
Mesa-Melgarejo L, Carrillo-Algarra AJ, Castiblanco RA, Reina LM, Ávila TM. Terapias de sustitución de la función renal: Metaestudio y síntesis de evidencias cualitativas. Aquichan. 2017;17(3):328-52.
Clarkson KA, Robinson K. Life on dialysis: A lived experience. Nephrol Nurs J. 2010; 37(1):29-35.
Tong A, Lesmana B, Johnson DW, Wong G, Campbell D, Craig JC. The perspectives of adults living with peritoneal dialysis: Thematic synthesis of qualitative studies. Am J Kidney Dis. 2013;61(6):873-88.
Bayhakki, Hatthakit U. Lived experiences of patients on hemodialysis: A meta-synthesis. Nephrol Nurs J. 2012; 39(4):295-304.
Jonasson K, Gustafsson L-k. You live as much as you have time to: The experience of patients living with Hemodialysis. Nephrol Nurs J. 2017;44 (1):35-41.
Ley básica reguladora de la autonomía del paciente y de derechos y obligaciones en materia de información y documentación clínica. Ley 41/2002, de 14 de noviembre. Boletín Oficial del Estado, nº 274, (15/11/2002). [Consultado 5 Dic 2018]. Disponible en: https://www.boe.es/buscar/doc.php?id=BOE-A-2002-22188
Botella J. Aspectos éticos, sociales y económicos del tratamiento de la insuficiencia renal. Nefrología. 1993;13(Supl 5):S38-40.
Arrieta J, Rodríguez-Carmona A, Remón C, Pérez-Fontán M, Ortega F, Sánchez-Tornero JA et al. La diálisis peritoneal es la mejor alternativa coste-efectiva para la sostenibilidad del tratamiento con diálisis. Nefrología. 2011;31(5):505-13.
Liberek T, Renke M, Skonieczny B, Kotewick k, Kowalewska J, Chmielewski M et al. Therapy outcome in peritoneal dialysis patients transferred from haemodialysis. Nephrol Dial Transplant. 2009;24 (9):2889-94.
Covic A, Bammens B, Lobbedez T, Segall L, Heimbürger O, Van Biesen W et al. Educating end-stage renal disease patients on dialysis modality selection: A clinical advice from the European Renal Best Practice (ERBP) Advisory Board. Nephrol Dial Transplant Plus. 2010;3(3):225-33.
Sauvé C, Vandyk AD, Bourbonnais FF. Exploring the facilitators and barriers to home dialysis: A scoping review. Nephrol Nurs J. 2016;43(4):295-308.
Sadala MLA, Bruzos GAS, Pereira ER, Bucuvic EM. Patients´ experiences of peritoneal dialysis at home: A phenomenological approach. Rev Lat Am Enfermagem. 2012;20(1):68-75
Meleis A. Transitions theory. In: Smith M, Parker M, editors. Nursing theories and nursing practice. 4ª ed. Philadelphia: F. A. Davis Company; 2015. p. 361-80.
Meleis A, Trangenstein P. Facilitating Transitions: Redefinition of the nursing mission. Nurs Outlook.1994;42:255-9.
Fex A, Flensner G, Ek AC, Söderhamn O. Health-illness transition among persons using advanced medical technology at home. J Caring Sci. 2011;25 (2):253-61.
Boissinot L, Landru I, Cardineau E, Zagdoun E, Ryckelycnk JP, Lobbedez T. Is transition between peritoneal dialysis and hemodialysis really a gradual process? Perit Dial Int. 2013;33(4):391-7.
Szeto CC, Kwan BC, Chow KM, Pang WF, Kwong VW, Leung CB, et al. Outcome of hemodialysis patients who had failed peritoneal dialysis. Nephron Clin Pract. 2010; 116(4):c300-6.
Covic A, Bammens B, Lobbedez T, Segall L, Heimbürger O, Van Biesen W et al. Educating end-stage renal disease patients on dialysis modality selection: A clinical advice from the European Renal Best Practice (ERBP) Advisory Board. Nephrol Dial Transplant Plus. 2010; 3(3):225-33.
Mendes A, Bastos F, Paiva A. A pessoa com Insuficiência Cardíaca. Factores que facilitam/dificultam a transição saúde/doença. Rev Enf Ref. 2010;3(2): 7-16.
Martin-McDonald K, Biernoff D. Initiation into a dialysis-dependent life: an examination of rites of passage. Nephrol Nurs J. 2002;29(4):347-52.
Lundmark M, Erlandsson LK, Lennerling A, Almgren M, Forsberg A. Health Transition after lung transplantation - a grounded theory study. J Clin Nurs. 2016; 25(15-16):2285-94.
Contreras de la Fuente HS, Castillo-Arcos LC. Fenomenología: una visión investigativa para enfermería. Cult Cuid. 2016;44:15-24.
Hutchinson TA. Transitions in the lives of patients with end stage renal disease: a cause of suffering and an opportunity for healing. Palliat Med. 2005; 19:590-4.
Kaezer F, Valente G. Vivendo entre o pesadelo e o despertar: o primeiro momento no enfrentamento da diálise peritoneal. Esc Anna Nery. 2011; 15(1):39-46.
Schumacher K, Meleis A. Transitions: A central concept in nursing. J Nurs Sch. 1994;26(2):119-27.
Lindsay H, MacGregor C, Fry M. The experience of living with chronic illness for the haemodialysis patient: An interpretative phenomenological analysis. Health Soc Rev. 2014; 23(3):232-41.
Moran A, Scott A, Darbyshire P. Waiting for a kidney transplant: patients´experiences of haemodialysis therapy. J Adv Nurs. 2010;67(3):501-9.
Arman M, Rehnsfeldt A. The hidden suffering among breast cancer patients: A qualitative metasynthesis. Qual Health Res. 2003; 13 (4):510–27.
Hurst H, Summers A, Beaver K, Caress AL. Living with encapsulating peritoneal sclerosis (EPS): The patient´s perspective. Perit Dial Int. 2014;34 (7):758-65.
Kralik D, Visentin K, Van Loon A. Transition: A literature review. J Adv Nurs. 2006;55(3):320-9.
Meleis AI. Transitions theory: Middle range and situation specific theories in nursing Research and practice. New York: Springer Publishing Company; 2010.
Meleis AI, Sawyer LM, Im EO, Hilfinger Messias DK, Schumacher K. Experiencing transitions: An emerging middle-range theory. ANS Adv Nurs Sci. 2000;23(1):12-28.
Calvey D, Mee L. The Lived experience of the person dependent on haemodialysis. J Ren Care. 2011; 37(4):201-7.
Guerra-Guerrero V, Plazas MP, Camargo BL, Salas AV, González CG. Understanding the life experience of people in haemodialysis: Adherence to treatment and quality of life. Nephrol Nurs J. 2014;41 (3):289-97.
Bayhakki, Hatthakit U. Lived experiences of patients on hemodialysis: A meta-synthesis. Nephrol Nurs J. 2012;39(4):295-304.