Article Sidebar
Downloads
Metrics
Main Article Content
Abstract
Objective: To explore comprehensively the experience lived in the treatment of Chronic Kidney Disease (CKD) and the meanings of care developed by nurses and family members who interact with CKD patients. Method: A qualitative study, phenomenological-hermeneutical approach, using the Van Manen´s theoretical framework, was carried out. 11 CKD patients, 5 caregivers and 5 nurses participated in the study, in the city of Neiva; information collected through in-depth interviews. Results: the dilemma between freedom and life emerged when building the sense of facing the treatment of Chronic Kidney Disease patients. Subthemes were framed in the hardness of hemodialysis, the meaning of the dialysis machine, the appearance of the arteriovenous fistula, the impact of the peritoneal catheter and diet. Conclusions: The treatment of the disease impacts the lives of people producing abrupt changes in their lives that leads them to recognize the finiteness of their existence, the alternatives to survive, the changes in their corporeality. The changes are not foreign to caregivers and nurses, called to provide support to cope with the treatment.
Keywords
Article Details
Author copyright notice
© Authors grant the publisher the non-exclusive licence to publish the work and consent to its use and distribution under the Creative Commons Attribution - NonCommercial 4.0 International (CC BY-NC 4.0) licence. Read the licensing information and the legal text here. This must be expressly stated wherever necessary.
References
- Ayar Y, Ersoy A, Ocakoglu G, Yildiz A, Oruc A, Soyak H, et al. Risk Factors Affecting Graft and Patient Survivals After Transplantation From Deceased Donors in a Developing Country: A Single-Center Experience. Transplant Proc 2017;49(2):270-7.
- Cruz V, Tagliamento G, Wanderbroocke AC. A manutenção da vida laboral por doentes renais crônicos em tratamento de hemodiálise: uma análise dos significados do trabalho. Saúde e Soc. 2016 Dec;25(4):1050-63.
- Bergjan M, Schaepe C. Educational strategies and challenges in peritoneal dialysis: A qualitative study of renal nurses’ experiences. J Clin Nurs. 2016;25(11-12):1729-39.
- Gill P. Stressors and coping mechanisms in live-related renal transplantation. J Clin Nurs 2012;21(11-12):1622-31.
- Cho M, Shin G. Gender-based experiences on the survival of chronic renal failure patients under hemodialysis for more than 20 years. Appl Nurs Res. 2016;32:262-8.
- Schaepe C, Bergjan M. Educational interventions in peritoneal dialysis: A narrative review of the literature. Int J Nurs Stud. 2015;52(4):882-98.
- Van Manen M. Phenomenology of practice: meaning-giving methods in phenomenological research and writing. 1ª ed. Walnut Creek: Routledge; 2014. p. 411.
- Patton M. Qualitative evaluation methods and Research Methods. 3rd ed. London: Sage; 2002. p. 806.
- Lincoln Y, Guba E. Naturalistic inquiry. Naturalistic inquiry. 1ª ed. Beverly Hills: Sage; 1985. p. 416.
- Campos C, Turato E. Hemodialysis treatment as perceived by the renal patient: clinical qualitative study. Rev Bras Enferm. 2010;63(5):799-805.
- Campos C, Mantovani F, Nascimento M, Cassi C. Social representations of illness among people with chronic kidney disease . Rev Gaucha Enferm. 2015;36(2):106-12.
- Niu H, Liu J. The psychological trajectory from diagnosis to approaching end of life in patients undergoing hemodialysis in China: A qualitative study. Int J Nurs Sci. 2017;4(1):29-33.
- Sciberras A, Scerri J. Facilitators and barriers to treatment with haemodialysis among persons in mid-adulthood: An interpretative phenomenological analysis. Scand J Caring Sci. 2017;31(4):695-701.
- Ramírez M, Ferrada M, Silva A, Courtin A, Malabrigo P. Exploring sexuality in women undergoing dialysis: A qualitative approach. Rev Nefrol Dial y Traspl. 2018;38(1):35-42.
- Mesa L, Carrillo A, Castiblanco R, Reina L, Ávila T. Renal replacement therapy: A meta-study and synthesis of qualitative evidence. Aquichan. 2017;17(3):328-52.
- Sadala M, Bruzos G, Pereira E, Bucuvic E. Patients’ experiences of peritoneal dialysis at home: a phenomenological approach. Rev Lat Am Enfermagem. 2012;20(1):68-75.
- Shubayra A. Continuous ambulatory peritoneal dialysis: nurses’ experiences of teaching patients. Saudi J Kidney Dis Transpl. 2015;26(2):309-13.
- Hong L, Wang W, Chan E, Mohamed F, Chen H. Dietary and fluid restriction perceptions of patients undergoing haemodialysis: an exploratory study. J Clin Nurs. 2017;26(21-22):3664-76.
- Kelly J, Campbell K, Hoffmann T, Reidlinger D. Patient Experiences of Dietary Management in Chronic Kidney Disease: A Focus Group Study. J Ren Nutr. 2018;28(6):393-402.
- Meuleman Y, Brinke L, Kwakernaak A, Vogt L, Rotmans J, Bos W, et al. Perceived Barriers and Support Strategies for Reducing Sodium Intake in Patients with Chronic Kidney Disease: a Qualitative Study. Int J Behav Med. 2015;22(4):530-9.
- Morales L, Castillo E. Vivencias de los adolescentes en diálisis: una vida con múltiples pérdidas pero con esperanza. Colomb Med. 2007;38(2):44-52.
- Polikandrioti M, Koutelekos I, Gerogianni G, Stefanidou S, Kyriakopoulos V, Floraki E, et al. Factors Associated with Hemodialysis Machine Dependency. Med Arch. 2017;71(2):122-7.
References
Ayar Y, Ersoy A, Ocakoglu G, Yildiz A, Oruc A, Soyak H, et al. Risk Factors Affecting Graft and Patient Survivals After Transplantation From Deceased Donors in a Developing Country: A Single-Center Experience. Transplant Proc 2017;49(2):270-7.
Cruz V, Tagliamento G, Wanderbroocke AC. A manutenção da vida laboral por doentes renais crônicos em tratamento de hemodiálise: uma análise dos significados do trabalho. Saúde e Soc. 2016 Dec;25(4):1050-63.
Bergjan M, Schaepe C. Educational strategies and challenges in peritoneal dialysis: A qualitative study of renal nurses’ experiences. J Clin Nurs. 2016;25(11-12):1729-39.
Gill P. Stressors and coping mechanisms in live-related renal transplantation. J Clin Nurs 2012;21(11-12):1622-31.
Cho M, Shin G. Gender-based experiences on the survival of chronic renal failure patients under hemodialysis for more than 20 years. Appl Nurs Res. 2016;32:262-8.
Schaepe C, Bergjan M. Educational interventions in peritoneal dialysis: A narrative review of the literature. Int J Nurs Stud. 2015;52(4):882-98.
Van Manen M. Phenomenology of practice: meaning-giving methods in phenomenological research and writing. 1ª ed. Walnut Creek: Routledge; 2014. p. 411.
Patton M. Qualitative evaluation methods and Research Methods. 3rd ed. London: Sage; 2002. p. 806.
Lincoln Y, Guba E. Naturalistic inquiry. Naturalistic inquiry. 1ª ed. Beverly Hills: Sage; 1985. p. 416.
Campos C, Turato E. Hemodialysis treatment as perceived by the renal patient: clinical qualitative study. Rev Bras Enferm. 2010;63(5):799-805.
Campos C, Mantovani F, Nascimento M, Cassi C. Social representations of illness among people with chronic kidney disease . Rev Gaucha Enferm. 2015;36(2):106-12.
Niu H, Liu J. The psychological trajectory from diagnosis to approaching end of life in patients undergoing hemodialysis in China: A qualitative study. Int J Nurs Sci. 2017;4(1):29-33.
Sciberras A, Scerri J. Facilitators and barriers to treatment with haemodialysis among persons in mid-adulthood: An interpretative phenomenological analysis. Scand J Caring Sci. 2017;31(4):695-701.
Ramírez M, Ferrada M, Silva A, Courtin A, Malabrigo P. Exploring sexuality in women undergoing dialysis: A qualitative approach. Rev Nefrol Dial y Traspl. 2018;38(1):35-42.
Mesa L, Carrillo A, Castiblanco R, Reina L, Ávila T. Renal replacement therapy: A meta-study and synthesis of qualitative evidence. Aquichan. 2017;17(3):328-52.
Sadala M, Bruzos G, Pereira E, Bucuvic E. Patients’ experiences of peritoneal dialysis at home: a phenomenological approach. Rev Lat Am Enfermagem. 2012;20(1):68-75.
Shubayra A. Continuous ambulatory peritoneal dialysis: nurses’ experiences of teaching patients. Saudi J Kidney Dis Transpl. 2015;26(2):309-13.
Hong L, Wang W, Chan E, Mohamed F, Chen H. Dietary and fluid restriction perceptions of patients undergoing haemodialysis: an exploratory study. J Clin Nurs. 2017;26(21-22):3664-76.
Kelly J, Campbell K, Hoffmann T, Reidlinger D. Patient Experiences of Dietary Management in Chronic Kidney Disease: A Focus Group Study. J Ren Nutr. 2018;28(6):393-402.
Meuleman Y, Brinke L, Kwakernaak A, Vogt L, Rotmans J, Bos W, et al. Perceived Barriers and Support Strategies for Reducing Sodium Intake in Patients with Chronic Kidney Disease: a Qualitative Study. Int J Behav Med. 2015;22(4):530-9.
Morales L, Castillo E. Vivencias de los adolescentes en diálisis: una vida con múltiples pérdidas pero con esperanza. Colomb Med. 2007;38(2):44-52.
Polikandrioti M, Koutelekos I, Gerogianni G, Stefanidou S, Kyriakopoulos V, Floraki E, et al. Factors Associated with Hemodialysis Machine Dependency. Med Arch. 2017;71(2):122-7.